Changing the Status of People with Down Syndrome for Good: Mothers, Families and Professionals Laying the Foundation for the Future

On Tuesday, March 17, 2020 at 10:00 AM - 12:00 PM

 UN conference postponed
due to the corona virus 

Tuesday, March 17
10:00 AM – 12:00 PM
Conference Room 2
CSW 64, United Nations Headquarters, New York

UN Pass required to attend. Please RSVP to by March 10, 2020



This side event will bring together Down syndrome advocates to discuss the challenges women and families face when they welcome a child with Down syndrome into their home, and the concrete cultural, legal, and policy changes that can help women and families welcomes and care for children with Down syndrome as children, and help persons with Down syndrome transition through youth into adulthood.



Remarks by Permanent Representative of the Mission of Cameroon to the United Nations



Experts will present on the unique and inherent dignity of individuals with Down Syndrome, assistance programs, and report on the global landscape which threatens the future of babies with diagnosed Down Syndrome from being born.

“Embrace – Don’t Erase Down Syndrome,” Sixteen-year old Chloe Kondrich who has Down syndrome shares her life.

“Trisomy Triathlete,” Eighteen-year old Gabriel Cobb who has Down syndrome shares his passion for life and competing in triathlons.

“Celebrating Ability,” Representative Cathy McMorris Rogers. Member of U.S. House of Representatives, Member of Congressional Down Syndrome Caucus, Mother of Down syndrome son and sponsor of ABLE Legislation to assist persons with intellectual disabilities join the workforce.

“DADvocate,” Kurt Kondrich, Down syndrome Advocate and father of Chloe, who was the inspiration for the Down Syndrome Prenatal Education Act (“Chloe’s Law”) that was enacted in Pennsylvania. The law provides pregnant women with information about Down Syndrome and how individuals with Down syndrome and their families can thrive and lead fulfilling lives. It is now being replicated across the United States.

“Change a Life – Heal a Heart,” Lauren Costabile, Founder, Hearts of Joy International. Providing life-saving heart surgery for individuals with Down syndrome in countries where families cannot afford medical care.

“Looking Ahead: Success and Challenges for the Down Syndrome Community,” Alexandra Tompson, Jerome Lejeune Foundation



Permanent Mission of the Republic of Cameroon to the United Nations, Center for Family and Human Rights (C-Fam), Jerome Lejeune Foundation, Hearts of Joy International